I read an interesting blog the other day that really stuck with me for some reason. This daughter was shocked to discover upon her Mother's death that she (her Mom) had MS. The mother hid it from her husband and children for many years so as not to be a burden.....
The daughter was hurt because she grew up thinking that her Mom was cold and distant. Apparently the mom thought that she was doing everyone a favor by not doing things with the family that she wasn't physically capable of doing. Or not explaining why she couldn't.
Wow. I guess I understand? No, not really. I for one could never do that. My family has given me the support, courage and drive to do everything that I am capable of doing right now.
We don't talk much about my MS at home. We all know it's there. No biggie. Taking care of my family and wanting to do as much possible with them makes me take care of myself. Reserving my energy when needed so I am able to keep up with them is important. Sometimes I forget that but crazy enough someone else around me does and reminds me. Just the same as I do for them. Which I think is pretty cool.
We are a family. We take care of each other. That's what families do. If your loved ones don't know what's going on with you how can they understand you? And vice versa.
I would hate to think that one of my boys thought I didn't love them very much just because I let my MS dictate my life and they weren't aware of it.
Everyone handles things differently I guess. I understand what that mom was trying to do, but my opinion is don't let MS or any disease keep you from letting those around just know how much they are loved.